Still moving forward!

Again, at the risk of tempting fate, I can say we are still moving forwards instead of backwards.

We had a lovely time with my sister staying.  It made such a difference to me to have someone else here and we hardly stopped talking.  Pete spent some time lying on the bed but this is part of his natural routine at the moment.  Wendy also looked at his heel to check it out for me, and she confirms it has healed nicely but said it is probably still painful because all the new skin in still quite tender.  I value her opinion as she is a nurse - retired yes, but still knows her stuff!! 

Yesterday Pete had his regular Botox injections - we had to cancel the last appointment so these were a month late.  He had the usual 3 injections but was given a higher dose as the last two lots didn't work so well.  Today he has been complaining that his arm is hurting - I'm hoping this is because the Botox is working and breaking down the muscles.  He has never had any after-effects before so this is new, but it could also be because of the dysesthesia.  Whatever, I really hope they work as his wrist and hand have been very very stiff.  I plan to ring the physiotherapist on Monday and ask her to come and give her opinion and tell us what exercises to do to help.  Incidentally, we only had to wait for 15 minutes and he apologised we had to wait that long!!!  People were moving through all the clinics all the time, so different from Tuesday in the haematology clinic.  Pete has had a letter from haematology apologising for the delay and asking him to go to his GP for a blood test - which we will arrange.

Today, as well as helping with the evening meal, Pete did a lot towards getting lunch.  He was having soup so he got it out, opened the tin and put it in the pan, then he got everything out for me to make a sandwich for myself.

Finally, I want to ask everyone who reads this to say a prayer for an amazing young lady I know.  She is 15 years old and has cystic fibrosis which is a very cruel disease.  She has been desperately ill at times and has been on the lung transplant list for over a year, and today they got the call they have been waiting for.  She travelled to Great Ormand Street hospital and the transplant went ahead today. Katie so deserves this chance at life and everyone is keeping fingers, toes and everything else crossed that it goes well.  At the same time, we are all thinking of the donor family and what they must be going through, losing a child - so a prayer for them aswell please.  It sort of puts all our problems in perspective.