Wednesday 13 March 2013

Hospital Appointment

Yesterday Pete had an appointment in the Haematology Dept at the hospital. He has Polycythemia which is a bone marrow disorder and, basically, it means he produces too many red blood cells. The upshot of this is that his blood has to be checked every couple of months and sometimes he has to have a pint taken off by venesection. Anyway we arrived for the 10.30 am appointment and sat there, and sat there and sat there! Eventually I asked what was happening at about 11.15 am and was told the 10 am appt. hadn't gone in yet! What! To cut a long story short we were eventually told at about 11.30 that the dr didn't actually have to see Pete but he needed a pint taken off within the week. Why were we there if he didn't need to be seen? We said we were going home but were rushed in to see dr quickly who explained his levels were a bit high so had to make appointment for a venesection within the week and then another appointment to see them in 4 weeks. So the appointments have been made - will I get Pete back there in 4 weeks? Only with a fight I fear!!! We have been assailed with appointments in the last couple of days as there are two at drs. surgery, two at hospital and also another one for the community rehab nurse to come for her regular visit. Busy, busy, busy!!! Then, to top it off and rub salt in the wound, Pete is sneezing and sniffing today with, I suspect, a cold he must have picked up at the hospital probably on Monday! So, he is not a happy bunny!!!
Also, first thing yesterday morning he decided to fall over - backwards!!! It was his own fault because he was going to sit in the w/chair but hadn't put the brake on so it skidded off with him in hot pursuit! It was ok because he manoeuvered himself back to the bed and then pulled himself up. Just a bit shaken up luckily. I'm not much help because I just watch it happening going 'ooh Pete, ooh, ooh, ooh, are you ok?' !!!
Physio and speech therapy today - good sessions all round. Pete has indicated to Bev that he likes writing to communicate, writing the first letter which is still going well. I won't be seeing them that often now as its back to work next week! I am going to miss them as they are always cheerful and upbeat. I have a diary by the phone for all appointments so they are going to look at that and put in when they are coming - I must make sure it is always up to date!! I am also going to leave a Communication Book for them to write in anything I need to know. Suzanne said she will probably also draw stick figures to explain any new exercises!! A new one today is to stand by the sink (again!) and put his weight on his right leg whilst side stepping over a rolling pin by his left leg. It's a good job no-one can see in our kitchen window or they would think I have him tethered there all day long!
First of the appointments at the drs surgery tomorrow morning for a blood test - will he have any blood left by the time they have all finished I ask myself!!

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