Procedure Booked!

Well, the pre-op assessment went ahead!  They were very good and understanding of the situation and the procedure to insert the suprapubic catheter will happen on 3rd April.  They did say they could book a date in March but it would probably be cancelled but April dates should be ok, so fingers crossed it goes ahead on that date.  I explained that Pete is unable to control his emotions and would not be able to wait too long before getting very angry and I would have to take him home, and she fully understood this and explained it to the booking office, she did ask for a first appointment but we have been given 10.00am as the time to be there - so will see how long we wait.  When we went in the nurse told us she had weighed Pete's notes, just for interest, and they weigh 4kg!  Quite hefty now!!! 

The carers' meeting went ahead again on Wednesday and, unfortunately, it was the penultimate one.  I am still thinking of mentioning us meeting up perhaps monthly or something as I think we are all finding great solace there.  Just to be able to talk and know we all feel the same means a lot.  There is no-one else that we can ever talk to so honestly and say how it is and how we feel. 

Yesterday my sister came up for the day and it is quite a trek at the moment as she has to get on a coach for part of the journey as the railway line at Dawlish was washed away!!  We had a brilliant time just talking - her daughter gets married in July and it was great to hear all about the wedding preparations.  I don't know whether Pete will go or not, he wants to but I don't know whether he would be able to stand such a long day and the journey there and back.  He gets very tired easily now and hasn't got much stamina.  Again, it is just a case of wait and see what he is like nearer the day.  Yesterday, whilst Wendy was here he was very anti-social and went on the bed!  But, there again, he spends most afternoons there now just having a rest and snooze.  

Meanwhile we just go on as usual - every day more or less the same, Pete no better and no worse and me just getting on with it, as I have to!  

Oh yes, and we have had a letter from the GP confirming Pete uses the wheelchair in the house and so I am hopeful we may get a reduction in council tax, but it is by no means certain.