Monday 4 February 2013

Losing the Battle.

Pete versus Aphasia. Guess who is winning? Definately not Pete I'm afraid. I am just about ready to admit defeat in this battle. Yes, we have had occasional breakthroughs and then I am really hopeful, but they don't seem to last long and back we go to square one. The community speech therapist (Bev) can only do one session a week and this doesn't always happen. There was no session last week due to her taking us to the Aphasia Group (which didn't help at all) and she hasn't made a time for this week so reckon that is off. I have trawled the Internet for help but that seems non-existent for anyone with no communication skills at all, plenty of hints and advice for people who have at least one skill left, but that doesn't help us. No carers of Aphasia sufferers are interested in sharing their experiences. Today I have looked for private speech and language therapists, plenty for children, stammerers, stutterers, etc. but none for aphasia sufferers. Their charges would be prohibitive anyway - they start from £30 to £50 per hour. So that leaves us here on our own, getting nowhere fast, and I don't think I can carry on fighting a losing battle on my own. Pete tries so hard, but is it worth the distress in the end? Over the last couple of days there have been stories of people suffering really bad injuries, but when being interviewed, they all say 'well, at least I can see, hear and talk'. Although not bitter and twisted over our situation, I do wish something would give or some help would miraculously appear!! Not going to happen though so, as I said, I am seriously considering giving up. It is seriously stressful for us both.
Now for better news! Physio today was good. Again a really strong wind was blowing so Pete didn't want to go out. So it was floor mobility! He had to get down onto the floor and then shuffle on his bottom to get somewhere where there was a piece of stable furniture with which to pull himself up onto and he could do that, slowly yes, but no problems. Then onto his knees and get along using his knees and one arm (crawling after a fashion!) and again he could do it without too much trouble. He has to keep practising this, but at least it means he can get up eventually if he is on his own, providing he hasn't hurt himself. Early this morning he fell when getting out of bed, mainly I think because he had had a sleeping tablet and was a bit woozy, but he managed to get into a position where he could pull himself up using the wheelchair which is always by the bed during the night.
So, that's it for today, not too good,but not all bad.


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